Publications on Linking Studies with PROMIS

Cizik, A. M., Zhang, C., Presson, A. P., Randall, D., & Kazmers, N. H. (2024). Linking QuickDASH and PROMIS Upper-Extremity Computer-Adaptive Test Scores in Hand Surgery: A Crosswalk Study. The Journal of Hand Surgery.

Hardouin, J. B., Coste, J., Leplège, A., & Rouquette, A. (2024). Equating and linking Patient-Reported Outcomes Measurement Information System 29-item questionnaire and 36-item Short-Form Health Survey domains using Rasch modeling. Journal of clinical epidemiology, 169, 111326.

Hartmann, C., Liegl, G., Rose, M., & Fischer, F. (2024). Towards Standardized Assessment of Outcomes in Back Pain—Validation of Linking Studies Between Disease-Specific and Generic Patient-Reported Outcome Measures. Journal of Clinical Medicine, 13(21), 6524.

Mansolf, M., Blackwell, C. K., Cella, D., & Lai, J. S. (2024). Assessing the interchangeability of linked scores in multivariable statistical analyses. Quality of Life Research, 33(4), 1121-1131.

Rogers, M. J., Daryoush, J. R., Zhang, C., Cizik, A., Presson, A. P., & Kazmers, N. H. (2024). Crosswalk between the PROMIS physical function CAT and PROMIS upper extremity CAT v1. 2 in a hand surgery population. Journal of Patient-Reported Outcomes, 8(1), 53.

Rothmund, M., Pilz, M. J., Schlosser, L., Arraras, J. I., Groenvold, M., Holzner, B., ... & EORTC Quality of Life Group. (2024). Equipercentile equating of scores from common patient-reported outcome measures of physical function in patients with cancer. Journal of Clinical Epidemiology, 165, 111203.

Liegl, G., Fischer, F. H., Woodward, M., Török, M., Strippoli, G. F., Hegbrant, J., ... & Rose, M. (2023). Physical performance tasks were linked to the PROMIS physical function metric in patients undergoing hemodialysis. Journal of Clinical Epidemiology, 159, 128-138.

Mansolf, M., Blackwell, C. K., Lai, J.-S., & Cella, D. (2023). Linking the Perceived Stress Scale to the PROMIS Psychological Stress Experiences–Pediatric in adolescents. Psychological Assessment, 35(10), 888–894.

Tang, X., Chapman, R. S., Peipert, J. D., & Cella, D. (2023). Establishing a common metric for physical function: Linking SARC-F and PROMIS® physical function. Journal of geriatric oncology, 14(8), 101622.

Tang, X., Schalet, B. D., Janulis, P., Kipke, M. D., Kaat, A., Mustanski, B., ... & Gorbach, P. M. (2022). Can a linking crosswalk table be applied to a different population? An independent validation study for a crosswalk between BSI depression and PROMIS depression scales. Plos one, 17(11), e0278232.

Heng, Stern, B. Z., Tang, X., Schalet, B. D., Collins, A. K., Chen, A. F., Bedair, H. S., O’Brien, T. M., Sisodia, R. C., Franklin, P. D., & Cella, D. (2022). Linking Hip Disability and Osteoarthritis Outcome Score-Physical Function Short Form and PROMIS Physical Function. Journal of the American Academy of Orthopaedic Surgeons. https://doi.org/10.5435/JAAOS-D-21-00736

Klaufus, L., Tang, X., Verlinden, E. et al. Linking the RCADS-25 to the PROMIS® pediatric item banks Anxiety and Depressive Symptoms in a general Dutch population sample. Qual Life Res (2022). https://doi.org/10.1007/s11136-021-03050-6

Tang, Schalet, B. D., Heng, M., Lange, J. K., Bedair, H. S., O’Brien, T. M., Sisodia, R. C., Franklin, P. D., & Cella, D. (2022). Linking the KOOS-PS to PROMIS Physical Function in Knee Patients Evaluated for Surgery. Journal of the American Academy of Orthopaedic Surgeons, 30(6), 281–289. https://doi.org/10.5435/JAAOS-D-21-00461

Bingham, C. O., 3rd, Bartlett, S. J., Kannowski, C., Sun, L., DeLozier, A. M., & Cella, D. (2021). Conversion of Functional Assessment of Chronic Illness Therapy-Fatigue to Patient-Reported Outcomes Measurement Information System Fatigue Scores in Two Phase III Baricitinib Rheumatoid Arthritis Trials. Arthritis care & research, 73(4), 481–488. https://doi.org/10.1002/acr.24144

Boulton, A. J., Kisala, P. A., Ni, P., & Tulsky, D. S. (2021). Linking the Spinal Cord Injury-Functional Index (SCI-FI) to the PROMIS Physical Functioning Item Bank. Archives of physical medicine and rehabilitation, S0003-9993(21)00181-7. Advance online publication. https://doi.org/10.1016/j.apmr.2021.02.011

Choi, S. W., Lim, S., Schalet, B. D., Kaat, A. J., & Cella, D. (2021). PROsetta: An R Package for Linking Patient-Reported Outcome Measures. Applied Psychological Measurement. https://doi.org/10.1177/01466216211013106

Edelen, M. O., Rodriguez, A., Herman, P., & Hays, R. D. (2021). Crosswalking the Patient-Reported Outcomes Measurement Information System Physical Function, Pain Interference, and Pain Intensity Scores to the Roland-Morris Disability Questionnaire and the Oswestry Disability Index. Archives of physical medicine and rehabilitation, 102(7), 1317–1323. https://doi.org/10.1016/j.apmr.2021.02.014

Marfeo, E., Ni, P., Wang, C., Weiss, D., & Cheville, A. L. (2021). Correlation and Crosswalks between Patient-Reported Functional Outcomes and PROMIS Physical Function among Medically Ill Patients. Archives of physical medicine and rehabilitation. https://doi.org/10.1016/j.apmr.2021.12.002

Schalet, B. D., Lim, S., Cella, D., & Choi, S. W. (2021) Linking Scores with Patient-Reported Health Outcome Instruments: A VALIDATION STUDY AND COMPARISON OF THREE LINKING METHODS. Psychometrika. https://doi.org/10.1007/s11336-021-09776-z

Herman, P. M., Edelen, M. O., Rodriguez, A., Hilton, L. G., & Hays, R. D. (2020). A protocol for chronic pain outcome measurement enhancement by linking PROMIS-29 scale to legacy measures and improving chronic pain stratification. BMC musculoskeletal disorders, 21(1), 671. https://doi.org/10.1186/s12891-020-03696-2

Tang, X., Schalet, B. D., Hung, M., Brodke, D. S., Saltzman, C. L., & Cella, D. (2021). Linking Oswestry Disability Index to the PROMIS pain interference CAT with equipercentile methods. The spine journal : official journal of the North American Spine Society, S1529-9430(21)00083-8. Advance online publication. https://doi.org/10.1016/j.spinee.2021.02.012

Thackeray, A., Hanmer, J., Yu, L., McCracken, P., & Marcus, R. (2021). Linking AM-PAC Mobility and Daily Activity to the PROMIS Physical Function Metric. Physical Therapy. https://doi.org/10.1093/ptj/pzab084

Kaat, A. J., Kallen, M. A., Nowinski, C. J., Sterling, S. A., Westbrook, S. R., & Peters, J. T. (2020). PROMIS® Pediatric Depressive Symptoms as a Harmonized Score Metric. Journal of pediatric psychology, 45(3), 271–280. https://doi.org/10.1093/jpepsy/jsz081

Klapproth, C. P., van Bebber, J., Sidey-Gibbons, C. J., Valderas, J. M., Leplege, A., Rose, M., & Fischer, F. (2020). Predicting EQ-5D-5L crosswalk from the PROMIS-29 profile for the United Kingdom, France, and Germany. Health and quality of life outcomes, 18(1), 389. https://doi.org/10.1186/s12955-020-01629-0

Lee, M. K., Schalet, B. D., Cella, D., Yost, K. J., Dueck, A. C., Novotny, P. J., & Sloan, J. A. (2020). Establishing a common metric for patient-reported outcomes in cancer patients: linking patient reported outcomes measurement information system (PROMIS), numerical rating scale, and patient-reported outcomes version of the common terminology criteria for adverse events (PRO-CTCAE). Journal of patient-reported outcomes, 4(1), 106. https://doi.org/10.1186/s41687-020-00271-0

Schalet, B. D., Janulis, P., Kipke, M. D., Mustanski, B., Shoptaw, S., Moore, R., Baum, M., Kim, S., Siminski, S., Ragsdale, A., & Gorbach, P. M. (2020). Psychometric Data Linking Across HIV and Substance Use Cohorts. AIDS and behavior, 24(11), 3215–3224. https://doi.org/10.1007/s10461-020-02883-5

Oude Voshaar, M., Vonkeman, H. E., Courvoisier, D., Finckh, A., Gossec, L., Leung, Y. Y., Michaud, K., Pinheiro, G., Soriano, E., Wulfraat, N., Zink, A., & van de Laar, M. (2019). Towards standardized patient reported physical function outcome reporting: linking ten commonly used questionnaires to a common metric. Quality of life research, 28(1), 187–197. https://doi.org/10.1007/s11136-018-2007-0

Tulsky, D. S., Kisala, P. A., Boulton, A. J., Jette, A. M., Thissen, D., Ni, P., DeWalt, D. A., Huang, I. C., Liu, Y., Mulcahey, M. J., Slavin, M., Magnus, B., Crump, H., Hanks, R., Charlifue, S., & Reeve, B. B. (2019). Determining a transitional scoring link between PROMIS® pediatric and adult physical health measures. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 28(5), 1217–1229. https://doi.org/10.1007/s11136-018-2073-3

Victorson, D., Schalet, B. D., Kundu, S., Helfand, B. T., Novakovic, K., Penedo, F., & Cella, D. (2019). Establishing a common metric for self-reported anxiety in patients with prostate cancer: Linking the Memorial Anxiety Scale for Prostate Cancer with PROMIS Anxiety. Cancer, 125(18), 3249–3258. https://doi.org/10.1002/cncr.32189

Kaat, A. J., Schalet, B. D., Rutsohn, J., Jensen, R. E., & Cella, D. (2018). Physical function metric over measure: An illustration with the Patient‐Reported Outcomes Measurement Information System (PROMIS) and the Functional Assessment of Cancer Therapy (FACT). Cancer, 124(1), 153-160. https://doi.org/10.1002/cncr.30981

Kaat, A. J., Newcomb, M. E., Ryan, D. T., & Mustanski, B. (2017). Expanding a common metric for depression reporting: linking two scales to PROMIS® depression. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 26(5), 1119–1128. https://doi.org/10.1007/s11136-016-1450-z

Katzan, I. L., Fan, Y., Griffith, S. D., Crane, P. K., Thompson, N. R., & Cella, D. (2017). Scale Linking to Enable Patient-Reported Outcome Performance Measures Assessed with Different Patient-Reported Outcome Measures. Value in health , 20(8), 1143–1149. https://doi.org/10.1016/j.jval.2017.05.012

Hays, R. D., Revicki, D. A., Feeny, D., Fayers, P., Spritzer, K. L., & Cella, D. (2016). Using Linear Equating to Map PROMIS(®) Global Health Items and the PROMIS-29 V2.0 Profile Measure to the Health Utilities Index Mark 3. PharmacoEconomics, 34(10), 1015–1022. https://doi.org/10.1007/s40273-016-0408-x

Reeve, B. B., Thissen, D., DeWalt, D. A., Huang, I. C., Liu, Y., Magnus, B., Quinn, H., Gross, H. E., Kisala, P. A., Ni, P., Haley, S., Mulcahey, M. J., Charlifue, S., Hanks, R. A., Slavin, M., Jette, A., & Tulsky, D. S. (2016). Linkage between the PROMIS® pediatric and adult emotional distress measures. Quality of life research, 25(4), 823–833. https://doi.org/10.1007/s11136-015-1143-z

Cook, K.F., Schalet, B.D., Kallen, M., Rutsohn, J.P., & Cella, D. (2015). Establishing a Common Metric for Self-Reported Pain:Linking BPI Pain Interference and SF-36 Bodily Pain Subscale Scores to the PROMIS Pain Interference Metric. Quality of Life Research, 24 (10), 2305-2318.

Schalet, B., Revicki, D., Cook, K., Krishnan, E., Fries, J., & Cella, D. (2015). Establishing a Common Metric for Physical Function: Linking the HAQ-DI and SF-36 PF Subscale to PROMIS® Physical Function. Journal of General Internal Medicine, 30(10), 1517-1523.

Schalet, B., Rothrock, N., Hays, R., Kazis, L., Cook, K., Rutsohn, J., & Cella, D. (2015) .Linking Physical and Mental Health Summary Scores from the Veterans RAND 12-Item Health Survey (VR-12) to the PROMIS® Global Health Scale. Journal of General Internal Medicine, 30(10), 1524-1530.

Choi, S. W., Schalet, B., Cook, K. F., & Cella, D. (2014). Establishing a Common Metric for Depressive Symptoms: Linking the BDI-II, CES-D, and PHQ-9 to PROMIS Depression. Psychological Assessment, 26(2):513-27.

Lai, J-S., Cella, D., Yanez, B., Stone, AA (2014). Linking Fatigue Measures on a Common Reporting Metric. Journal of Pain and Symptom Management. 48(4):639-48.

Schalet, B. D., Cook, K. F., Choi, S. W., & Cella, D. (2014). Establishing a Common Metric for Self-Reported Anxiety: Linking the MASQ, PANAS, and GAD-7 to PROMIS Anxiety. Journal of Anxiety Disorders, 28 (1) 88-96.

Wahl, I., Löwe, B., Bjorner, J. B., Fischer, F., Langs, G., Voderholzer, U., Aita, S. A., Bergemann, N., Brähler, E., & Rose, M. (2014). Standardization of depression measurement: a common metric was developed for 11 self-report depression measures. Journal of clinical epidemiology, 67(1), 73–86. https://doi.org/10.1016/j.jclinepi.2013.04.019

Askew, R., Kim, J., Chung, H., Cook, K., Johnson, K., & Amtmann, D. (2013). Development of a Crosswalk for Pain Interference Measured by the BPI and PROMIS Pain Interference Short Form. Quality of Life Research, 22(10), 2769-2776.

Olino, T.M., Yu, L., McMakin, D.L., Forbes, E.E., Seeley, J.R., Lewinsohn, P.M., & Pilkonis, P.A. (2013). Comparisons across Depression Assessment Instruments in Adolescence and Young Adulthood: An Item Response Theory Study Using Two Linking Methods. Journal of Abnormal Child Psychology, 41(8), 1267-1277.

Noonan, V.K., Cook, K.F., Bamer, A.M., Choi, S.W., Kim, J., & Amtmann, D. (2012). Measuring Fatigue in Persons with Multiple Sclerosis: Creating a Crosswalk between the Modified Fatigue Impact Scale and the PROMIS Fatigue Short Form. Quality of Life Research, 21(7), 1123-1133.

Gibbons, L. E., Feldman, B. J., Crane, H. M., Mugavero, M., Willig, J. H., Patrick, D., Schumacher, J., Saag, M., Kitahata, M. M., & Crane, P. K. (2011). Migrating from a legacy fixed-format measure to CAT administration: calibrating the PHQ-9 to the PROMIS depression measures. Quality of life research, 20(9), 1349–1357. https://doi.org/10.1007/s11136-011-9882-y

Chen, W. H., Revicki, D. A., Lai, J. S., Cook, K. F., & Amtmann, D. (2009). Linking pain items from two studies onto a common scale using item response theory. Journal of pain and symptom management, 38(4), 615–628. https://doi.org/10.1016/j.jpainsymman.2008.11.016

Revicki, D. A., Kawata, A. K., Harnam, N., Chen, W. H., Hays, R. D., & Cella, D. (2009). Predicting EuroQol (EQ-5D) scores from the patient-reported outcomes measurement information system (PROMIS) global items and domain item banks in a United States sample. Quality of life research, 18(6), 783–791. https://doi.org/10.1007/s11136-009-9489-8

Publications on Linking Studies with Other Patient-Reported Outcomes

Shoop‐Worrall, S. J., Oude Voshaar, M. A., McDonagh, J. E., Van de Laar, M. A., Wulffraat, N., Thomson, W., ... & Verstappen, S. M. (2020). A Common Functional Ability Score for Young People with Juvenile Idiopathic Arthritis. Arthritis care & research.

Zimmermann, J., Müller, S., Bach, B., Hutsebaut, J., Hummelen, B., & Fischer, F. (2020). A common metric for self-reported severity of personality disorder. Psychopathology, 53(3), 161-171.

Adroher, N. D., Kreiner, S., Young, C., Mills, R., & Tennant, A. (2019). Test equating sleep scales: applying the Leunbach's model. BMC medical research methodology, 19(1), 141. https://doi.org/10.1186/s12874-019-0768-y

Boulton, A. J., Tyner, C. E., Choi, S. W., Sander, A. M., Heinemann, A. W., Bushnik, T., Chiaravalloti, N., Sherer, M., Kisala, P. A., & Tulsky, D. S. (2019). Linking the GAD-7 and PHQ-9 to the TBI-QOL Anxiety and Depression Item Banks. The Journal of head trauma rehabilitation, 34(5), 353–363. https://doi.org/10.1097/HTR.0000000000000529

Friedrich, M., Hinz, A., Kuhnt, S., Schulte, T., Rose, M., & Fischer, F. (2019). Measuring fatigue in cancer patients: a common metric for six fatigue instruments. Quality of life research, 28(6), 1615–1626. https://doi.org/10.1007/s11136-019-02147-3

Kaat, A. J., Blackwell, C. K., Estabrook, R., Burns, J. L., Petitclerc, A., Briggs-Gowan, M. J., Gershon, R. C., Cella, D., Perlman, S. B., & Wakschlag, L. S. (2019). Linking the Child Behavior Checklist (CBCL) with the Multidimensional Assessment Profile of Disruptive Behavior (MAP-DB): Advancing a dimensional spectrum approach to disruptive behavior. Journal of child and family studies, 28(2), 343–353. https://doi.org/10.1007/s10826-018-1272-4

Batterham, P., Sunderland, M., Slade, T., Calear, A., & Carragher, N. (2018). Assessing distress in the community: Psychometric properties and crosswalk comparison of eight measures of psychological distress. Psychological Medicine, 48(8), 1316-1324. doi:10.1017/S0033291717002835

Lapin, B. R., Kinzy, T. G., Thompson, N. R., Krishnaney, A., & Katzan, I. L. (2018). Accuracy of Linking VR-12 and PROMIS Global Health Scores in Clinical Practice. Value in health, 21(10), 1226–1233. https://doi.org/10.1016/j.jval.2018.03.011

Sunderland, M., Batterham, P., Calear, A., Carragher, N., Baillie, A., & Slade, T. (2018). High agreement was obtained across scores from multiple equated scales for social anxiety disorder using item response theory. Journal of clinical epidemiology, 99, 132–143. https://doi.org/10.1016/j.jclinepi.2018.04.003

Reeve, B. B., Thissen, D., DeWalt, D. A., Huang, I. C., Liu, Y., Magnus, B., Quinn, H., Gross, H. E., Kisala, P. A., Ni, P., Haley, S., Mulcahey, M. J., Charlifue, S., Hanks, R. A., Slavin, M., Jette, A., & Tulsky, D. S. (2016). Linkage between the PROMIS® pediatric and adult emotional distress measures. Quality of life research, 25(4), 823–833. https://doi.org/10.1007/s11136-015-1143-z

Kisala, P. A., Tulsky, D. S., Kalpakjian, C. Z., Heinemann, A. W., Pohlig, R. T., Carle, A., & Choi, S. W. (2015). Measuring anxiety after spinal cord injury: Development and psychometric characteristics of the SCI-QOL Anxiety item bank and linkage with GAD-7. The journal of spinal cord medicine, 38(3), 315–325. https://doi.org/10.1179/2045772315Y.0000000029

Tulsky, D. S., Kisala, P. A., Kalpakjian, C. Z., Bombardier, C. H., Pohlig, R. T., Heinemann, A. W., Carle, A., & Choi, S. W. (2015). Measuring depression after spinal cord injury: Development and psychometric characteristics of the SCI-QOL Depression item bank and linkage with PHQ-9. The journal of spinal cord medicine, 38(3), 335–346. https://doi.org/10.1179/2045772315Y.0000000020

ten Klooster, P. M., Oude Voshaar, M. A., Gandek, B., Rose, M., Bjorner, J. B., Taal, E., Glas, C. A., van Riel, P. L., & van de Laar, M. A. (2013). Development and evaluation of a crosswalk between the SF-36 physical functioning scale and Health Assessment Questionnaire disability index in rheumatoid arthritis. Health and quality of life outcomes, 11, 199. https://doi.org/10.1186/1477-7525-11-199

Fischer, H. F., Tritt, K., Klapp, B. F., & Fliege, H. (2011). How to compare scores from different depression scales: equating the Patient Health Questionnaire (PHQ) and the ICD-10-Symptom Rating (ISR) using Item Response Theory. International journal of methods in psychiatric research, 20(4), 203–214. https://doi.org/10.1002/mpr.350

Holzner, B., Bode, R. K., Hahn, E. A., Cella, D., Kopp, M., Sperner-Unterweger, B., & Kemmler, G. (2006). Equating EORTC QLQ-C30 and FACT-G scores and its use in oncological research. European journal of cancer, 42(18), 3169–3177. https://doi.org/10.1016/j.ejca.2006.08.016

McHorney, C., & Cohen, A. (2000). Equating Health Status Measures with Item Response Theory: Illustrations with Functional Status Items. Medical Care, 38(9), II43-II59. Retrieved May 20, 2021, from http://www.jstor.org/stable/3768062

Orlando, M., Sherbourne, C. D., & Thissen, D. (2000). Summed-score linking using item response theory: Application to depression measurement. Psychological Assessment, 12(3), 354–359. https://doi.org/10.1037/1040-3590.12.3.354

Reports

Choi, S. W., Podrabsky, T., McKinney, N., Schalet, B. D., Cook, K. F., & Cella, D. (2012). PROSetta Stone® Analysis Report: a Rosetta Stone for Patient Reported Outcomes. Volume 1.  Chicago, IL: Department of Medical Social Sciences, Feinberg School of Medicine, Northwestern University.

Cella D, Schalet BD, Kallen M, Lai J-S, Cook KF, Rutsohn J, Choi SW, Schalet BD, Kallen M, Lai J-S, Cook KF, Rutsohn J, Choi SW. (2016). PROSetta Stone® Analysis Report: A Rosetta Stone for Patient Reported Outcomes. Volume 2.  Chicago, IL: Department of Medical Social Sciences, Feinberg School of Medicine, Northwestern University.

Cella D, Schalet BD, Kallen M, Lai J-S, Cook KF, Rutsohn J, Choi SW, Schalet BD, Kallen M, Lai J-S, Cook KF, Rutsohn J, Choi SW. (2016). PROsetta Stone® Analysis Report: A Rosetta Stone for Patient Reported Outcomes. Volume 3. Chicago, IL: Department of Medical Social Sciences, Feinberg School of Medicine, Northwestern University.

Choi, S. W., Podrabsky, T., McKinney, N., Schalet, B. D., Cook, K. F., & Cella, D. (2012). Prosetta Stone® Methodology: A Rosetta Stone For Patient Reported Outcomes. Chicago, IL: Department of Medical Social Sciences, Feinberg School of Medicine, Northwestern University.